To learn more about Cystic Fibrosis and how you can help, please visit our webpage at http://livewitheverybreath.org
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To learn more about Cystic Fibrosis and how you can help, please visit our webpage at http://livewitheverybreath.org
With Every Breath: My Life with Cystic Fibrosis 
I completely understand what you are going through and your family … my son is 1 year post transplant … he was also listed and transplanted at Florida Hospital South. If you would like to talk to someone who has been through it there with the fabulous transplant team please feel free to reach out to my son on Facebook – Brent Snyder or Lungs for Brent page. Praying for you and wishing you all the very best!! One thing I have learned over the years of caring for my son is that CFers are the strongest people I know!! Keep fighting and stay strong!!
Thank you so much and, yes, we would like to talk to you once things settle down post-transplant. This FH transplant team truly is wonderful!
I pray you are doing well.
Hey Jordan,
This is Wendy’s mom Sharyn I’ve been following your story and progress since Wendy and Stephanie came to see you. I just wanted to say how happy I am on the how strong you have been through all of this. Your will to live is why your still here with us today. I commend you for that. Just wanted to let you know how you have effected so many peoples trust in god and in Christmas miracles. You are a true angel sent from God. You spent thanksgiving with us here a few years ago and I hope I will see you and your family here again in the near future. Take care Hun and remember “With Every Breath”
Prayers from Cape Coral,
Sharyn Larson
Jordan,
You won’t remember me but I took care of you on 5800 during your stay at Florida Hospital before your transplant. I was pregnant and arrived for my shift that started with your intubation, then your trach, and the beginning of your workup for you current lungs. I think about you frequently and wonder how you are doing. I remember being in your room all day with other nurses feeding me at the door and then me leaving to cry because as hard as we were fighting for you, none of us, including your physicians, knew if your lungs would get to you in time. Finally, we got wind of your transplant! During your recovery in CVICU I saw your family several times and your dad was so gracious to give me your blog information so I could keep up with you:) I regretfully haven’t followed you in forever but am currently talking about cystic fibrosis in my pathophysiology class and was thinking of you and your family. I hate that you may need a second transplant but rest assured, our nursing staff would love to care for you and yours! I have two little girls and hope that they can conquer what you have and remain as resilient as you have through your battle. Be strong! Praying for you! Go get those lungs!
Tara